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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Friday, March 6, 2009

Still Trying to Fight

Maxton is still trying to fight. When we got here around 6 he was in the middle of one of his episodes. We walked back to a room full of people and monitors beeping with levels falling. After about an hour and a half he is now "stable" again. Unfortunately, he is also on the maximum amount of support that they can do for him. Now, it is up to him. We know that he is a fighter and will do his best. We are praying that God be with him and fight along side him. We were told that at this time he has about a 30% chance of making it. We are praying like crazy that he doesn't have another episode during the night because there isn't anything they will be able to do. They did mention ECMO again. The brain bleeding is not any better, but it is also not any worse. They are not sure whether to do ECMO but will likely do it if he has another episode. Please pray for our little man. I can't imagine losing him as we both love him so very much. We are trying hard to stay positive and know that other babies have been in position and come through just fine. This gives us hope and we try to remember everyones stories when meeting with the doctors. We appreciate you all, more than words can ever say.

16 comments:

Ashworth Family said...

Of course we will pray for you. I know this is so hard. We are thinking of you all the time-

Ashley said...

We are praying and so are all of our friends! Fight Maxton fight! Thank you for the updates Ashley....we are all hanging onto every word!

This Is Not The Life I Ordered said...

I have just found your story. I am the mother of a CDH Angel. I know exactly what you are going through right now, and I will say many prayers for your precious little fighter. Hang in there, and try to rest, even though I know that it is near impossible when your baby is so critical.

I will be thinking of you and your little fighter...

Stacey
mom to my angel
Ethan William James Marchand
carepages.com/sickkids
BabyMarchand

Burt and Christy Michel said...

Praying for Max

Liz and Shane said...

we are praying for Maxton. we are thinking of you.
Lord please help Maxton get stable. He needs your help right now God. His little body is working overtime. Please carry him in your hands so he can get stable and then have his repair surgery. God at your mercy please help little Maxton.
Amen

Dotty said...

my thoughts and prayers have been with you since the begining, and of course they continue. Maxton is a fighter and he is so strong. he has already touched more lives than most do their whole lives. keep on fighting Maxton, your mommy and daddy want so terribly to see you grow stronger and stronger. i hope you get peace tonight and a sence of warmth enlopes you, then you will know God is right beside you and Maxton and he is with you every step. God Bless!!

Jenn said...

We are friends of Ashley and Brett and have been praying for you all! Please know that Maxton's story has touched us in a deep way and we are wih you! Love and prayers, The Waltons

Alicia said...

I'll be praying for you and your family. I'm Joseph's "grammy" (the girls call me that). God is holding your hands.

Keep looking up where miracles happen...

My blessings...

Jaime's World said...

The first thing we did this morning was check your site for an update. We are sorry to hear that Maxton is still having issues, but we are praying that he stabilizes soon. Sending love and prayers,
Sheryl & Tom

jkt1331 said...

i've been praying for Maxton since i found out about him and i will continue to pray for him. keep fighting sweet boy!
Joanne(Johnn Michael's mom R-CDH 3/11/07)

Rhonda in KY said...

We're all still praying hard for Maxton & family. <3

Marion said...

Ashley,

I was inthe same exact position with Addison a little over a week ago. You will be supprised how srtong and determined these little ones are. Just stay postive. If you need to talk call me 404-849-1800 or email me marionacord@hotmail.com. Sending love and prayers your way!

Craig and Kristi Kuehl said...

We are praying hard that Max will continue to fight and improve. I am thinking of you guys all day, knowing how rough this journey has been in the last few hours & days. It speaks vaolumes how much you love Max, and he feel that! I wish that this ride was a little less bumpy for you, but don't lose faith in what God can accomplish.

Hang in there Max--FIGHT!!!

FaithCDH said...

Max we are all praying for you. You can do this little man. There are plenty of angels cheering you on to fight CDH.

Love, hugs and prayers,

Amy

Tracy Meats said...

Fight Maxton Fight!! Praying for you little warrior and hoping doctors are able to get Maxton comfortable and more stable.

Thinking of you and that precious baby, Tracy - mom to Ian

Stephanie said...

We are still praying for you and won't stop. We also want to pray for all the doctors and nurses that are playing a part in Maxton's fight. Thinking of you and your family.

Love,
Stephanie
Kamryn's Mommy