Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Saturday, March 21, 2009

The plan

As we speak they are switching Maxton from the high oscillating vent to the jet. Due to the bleed and the swelling, Maxton's tummy area is now pushing on his diaphragm, which is pushing on his lungs. His sats have dropped off dramatically this last couple hours to about 60 right now. The good thing is that his pressure is now up and staying up which makes them think the bleed has likely stopped. His heart rate is also in the 140s-150s. Hopefully the switch to the jet will help his oxygenation improve.

Plan B- If the oxygen doesn't improve then they will open his incision from yesterday, look around for the bleed and try to fix it, and then put a silo on. This would be a bag on the outside of his body to hold his intestines, which would remove some of the swelling volume and let his lungs expand more.

Plan C- If neither of these works then ECMO may be used.

Please pray that the doctors are able to stabilize our little man soon. We are so very concerned about this. We knew that he would likely be sicker after the surgery, but were hoping for the best and may have tricked ourselves into thinking he was going to do great. Today has been especially tough and it seems like it is only just starting.

Ashley and David and sweet baby Maxton


Owain's mommy said...

Sending lots of prayers and positive energy Maxton's way!


Elizabeth said...

This isn't unusual, but it is when you go through it with your baby. Keeping you all in my thoughts and prayers may the bleeding stop and he start healing!

(Lung Function chants too!)

Craig and Kristi Kuehl said...

Hang in there you guys. We are sending lots and lots of prayers and "healing vibes" your way. Max ALWAYS seems to rebound--don't lose faith! I wish this ordeal was easier--I know I am scared to death of what lies ahead--but Max is a strong little guy.

Much love and keep us posted...

Jaime's World said...

Thanks for the update!
Here's hoping plan "A" is successful!

Many prayers coming your way!


April Swarthout said...

Just checking back in on Hoss! Maxton is still in my thoughts an d prayers.


mommadukesliz46 said...

hi my name is liz, my grandson was born oct. 21, 08 with cdh. he continues to do wonderful each day, we are so lucky and they gave us little if any hope when he was born. he had his surgery 2 days after birth. he has only one functioning fully matured kidney, and one fully funtioning the lung, never been given many details about the other, and his heart is on the wrong side...despite all this he has been home since thanksgiving and has only had a few setbacks non requiring hospitalization...i thank god everyday and your guy is such a fighter and i know he has some special angels watching over him every minute of everyday...even during the hard times take a few minutes to refuel your inner self..remember you have to take care of yourself to beable to continue to take care of him...maxton, you and your family are in my daily prayers and i have also added him to my church prayer list...if you ever need to talk you can email me at