Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Wednesday, March 4, 2009

Hangin in there.

I got to meet my beautiful son officially this morning around 4:30. I did see him after the delivery when I leaned up on the table to get a quick peak before they intubated him. He looked so pitiful at first. His heart rate had been kinda dropping the last few pushes and when he was born he was purple and his little mouth was open without any sound. At first I was worried he wasn't alive, but he pinked up and he was doing very well when I met him this morning. His blood gases were good. According to the doctor he is doing "great"... he said that twice, once when we spoke at 4 and once at 8, so I am assuming it is true. His sats were between 96-100 with the vent and he was really breathing over it. He is still trying to breathe over the vent. They have him on fentanyl but he is pretty stubborn and isn't wanting to rest too much. His pulmonary hypertension is doing well with the nitric oxide they are giving him.

I just saw him again about 30 mintues ago. They put a PICC line in this morning. They also had to add some dopamine for his blood pressure. Overall, they are still telling me that he is looking "great". I feel very relieved to hear this and am so glad to see him looking so well. Apparently the surgeons met this morning and think that if he continues to do this well they may do surgery on Saturday. I was very suprised to hear this and wasn't thinking about surgery talk at all.

Hopefully I will be able to get out of the hospital tomorrow. I am looking forward to going home and getting some rest and of course, coming back to see my little Hoss. He weighed 8 lbs 11 ozs last night and was 20 3/4 inches long. I appreciate all the prayers everyone has said and feel so lucky to have such a good support system. Plan to update tomorrow unless something happens tonight.


Alex & Ingrid Houchin said...

Welcome to the world little Maxton! So glad to hear that he is ventilating well. His stats sound great..we are praying that he continues to remain stable and get to surgery quickly.
Fight little one!

Alina, Ingrid & Alex

Jaime's World said...

Initial sats sound good Maxton...keep em' coming! We're all routing for you!
(Rest up David and Ashley)
Lots of prayers coming your way!

Lisa said...

I am so happy for you! It sounds like things are moving right along and going good. I have been thinking of you all day!

Craig and Kristi Kuehl said...

Way to go Max! I, too have been checking in every hour for an update. Get some rest Ashley, you are gonna need it. It sounds like he is doing great...and I am sure will continue to do so. I am saying alot of prayers for your not-so-little man...You guys are in our thoughts :)

Tracy Meats said...

It sounds like Maxton is a fighter and strong and doing very well!! Many prayers he continues to remain stable and can have his repair surgery soon. Get plenty of rest Ashley and let your body heal too. Fight Maxton Fight!!!

Congratulations Ashley and David on the birth of your son!!
Tracy Meats - mom to Ian, born with a LCDH on 4/3/04

Amanda said...

I've been thinking about you and your family all day. Everything sounds like it is going along as it should be!

Elizabeth said...

When they say your baby with CDH is doing great - believe them! They pull no punches on this ride. Maxton is doing wonderful and surgery is the first hurdle to get over. He can do it. Mom and Dad hang on for the ride. May it be a kiddie rollercoaster ride.

With thoughts, prayers and continued lung function chants,

Kenny and Jennifer Miller said...

Thanks for the update, glad to hear Maxton is doing so well! I think these babies are born with boxing gloves on!


Ashworth Family said...

Those sats are great! If he is to have surgery on Saturday he must be doing really, really well! I am so happy for you. God bless your family!

Burt and Christy Michel said...

Welcome to the world Maxton !!!
He sounds like quite the little champ. Praying everything continues to keep moving forward.
Congratulations on your new arrival.
Christy Michel

The Vierig's said...

I totally agree...those docs don't candy coat anything! Everything sounds great. Another big boy...Bodee was 8 12 and it definitely helped him out :). Can't wait to see pics.

Jonathan and Sarah said...

I'm glad he's doing well!! Hopefully no ECMO! He sounds like God has made him one tough cookie :) Noah fought sedation too- what is it with these kiddos!? Don't they know they'll have time to play later!? :) We are praying for you guys!!