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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

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Thursday, March 19, 2009

Tomorrow and Pretty peepers!

I just wanted to let everyone know that the surgery is expected to take about an hour half. We are looking at like an hour prep time because they are moving the OR to the NICU. Then, the surgery, then about 1-2 hours of clean up/stabilization. I figure that I won't know much until like 2 or 3. I know the surgeons are supposed to let us know how it went, but I may not update the blog until I know that he is stabilized. I just wanted to let you all know that I plan to update it fairly soon after I find anything out. Of course, this time frame is assuming things happen on time. :-) We all know how that goes!

Everything is looking good for tomorrow. Max's heart rate was from 118-138 most of the day, ocassionally in the 140s. His nitric is off for now. He is on phenobarbital, versed, and morphine. He is on the vent still (delta p) and it's settings were 24, with the MAP at like 12.0-13.0 (depending on how much he is breathing). I know the settings will all be different tomorrow, but it is so good to know that he can wean off of things and do well!

Despite all the sedatives that Max is on, Max opened his beautiful little eyes more today. I went to pick up David at work and when we came back David said "Hey buddy" and that eye opened really wide and he was moving it around looking for his daddy. :-) Everytime David would say something he would open his eye (or try to open it) and look around. ( I must say, I was slightly jealous.. hehe) Poor kid can't really focus on anything due to being overly sedated, but he looks so cute trying to see us. :-) I, of course, did not have my camera with me and had to run down to the car to get it. I got some video and a couple of pictures. I cant wait til we see his eyes and he is able to be more awake, but this was awesome. I think Max is really trying to tell me not to worry, that he will be fine! :-)

9 comments:

Elizabeth said...

Daddy's have that effect on these babies. (Because they are funny and amusing!)

Keeping you all in my thoughts, prayers and sending Lung Function chants,
Elizabeth

Craig and Kristi Kuehl said...

Max is just telling you it is all going to be okay, and he is ready for tomorrow!! Will be saying extra prayers for him tonight.

Brad, Kellie, Lucy and Baby Carter said...

He was just winking at you, saying "It'll be ok Mom & Dad" Gosh, I can't believe how nervous I am for you. Let us all know something when you can. We're sending lots of prayers.

Rhonda in KY said...

Good luck Maxton!

Sending up lots and lots of prayers for all of you today.

Ashworth Family said...

Isn't it amazing the first time you see their eyes open? Good luck today, we'll be thinking of you!

cheese4610 said...

Lots of Prayers for Maxton today!!

((((((((HUGS)))))))))

Union County Surgery

theparkerreesefoundation said...

Keeping y'all in our thoughts and prayers!!!

Update us when you can....

Tracy Meats said...

Thinking of you and Maxton today!!

Alex & Ingrid Houchin said...

Many prayers that Maxton's surgery goes well and that he will be stabilised quickly afterwards!
Do keep us updated.

Hugs,

Ingrid, Alex & Alina