Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Wednesday, March 18, 2009

No more Nitric?

Maxton is still doing well. He is now on the morphine and has been having little shivers today. I am not sure if it is from the switch or not but I covered him up really good before I left for the afternoon. He has been able to lose his brain oximeter due to it running pretty high. He was down to 1 on his nitric when we were there and they were planning to turn it off sometime this afternoon. Hopefully when I go back he will have it off and still be satting fine. :-) His oxygen is back down to 40 and his delta p is back down to 24. All in all, he had a good night last night and a good day today. They also took one of his IVs out of his hand so he has a free hand to grasp mommy's finger. :-) When I went this afternoon they let me change his diaper because he had wet over his cathater again. They also let me take his temperature and swab out his mouth again. I love being able to help and interact with him. The other big news of the day.. Maxton had two poopies last night!!! Thsi was his first since birth so I made a big deal about this morning!!! GOOO MAXTON!!! :-)

The surgeons came in before we left to look at him. One commented how much better he looks this week than last week and I must say- I Agree! She also said that they weren't sure when they were doing surgery. We told her we were told that it would be tomorrow but she acted like that might not happen. She said that it really depends on how many emergencies they have come in because they are short staffed because it is Spring Break. I was not too happy to hear that- especially since my mom used her vacation to stay here another week (this week) so that she would be here for surgery. Hopefully he really does have surgery tomorrow. I am going to plan that he will anyways. Many thanks for all the prayers. I know that is why we still have Maxton with us!


Ashworth Family said...

Wow! Sounds like Maxton is doing wonderfully. We'll be anxiously waiting to hear about surgery tomorrow. Hopefully it will happen and he will sail through it just fine!

Elizabeth said...

He is doing wonderfully - weaning the Nitric is amazing for these babies before surgery - and don't be surprised if that is back after!

Keeping you all in my thoughts, prayers and Lung Function chants,

Jaime Smith said...

GO MAXTON. I am sooooo happy he is doing so well!! I hope he gets to have the surgery tomorrow too, I know how those waiting games are. Not to mention I almost feel like I am there with you all playing the waiting game, ha. You do a great job with your posts, I think it is important to have all of this info to share with him down the road. Have they checked his brain bleed latley (Reggan asks every night)?

BIG HUGS!! The Smith's

FaithCDH said...

What a champ he is! Praying that Maxton is still able to have surgery tomorrow. He has already come so far!

Amy, STeve, ^Faith^ and baby Miles

Tracy Meats said...

Maxton is doing so well. Fingers crossed the surgery is a go for tomorrow and everything goes very well. Praying for your little warrior!!

Hugs, Tracy - mom to Ian

Rachel said...

Ashley, I am delighted to hear that Maxton is doing so well. We will all be anxiously waiting to hear about the surgery tomorrow. Hopefully it will happen it will happen and that he will sail through it wonderfully. Love ya. Rachel

Jenn said...

We are blown away by your smiles, his strength, and yours. We are so thrilled that tomorrow WILL BE the day! We have kept close tabs on your journey and you have made us better parents. We understand that we are strangers, but you have become a part of our family as we pray for you several times a day. Please know that our school (Sacred Heart Catholic School) is also praying every morning. May God give you all continued strength and many many more blessed days.
Jenn, Mike, and Callie (10 weeks) Walton
friends of the Hackshaws