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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Monday, March 23, 2009

Arrangements

We have decided to have Maxton's final resting place in Kentucky. Partially because we hope to move there one day, and partially because it is so much more peaceful than the city.

Visitation
Wednesday March 25th
4-6pm
Whitsell Funeral Home
609 N Main St.
Sturgis, KY

Funeral Service
Thursday March 26th
2pm
Henshaw Christian Church
237 Chapel Hill Rd.
Morganfield (Henshaw), KY

We will also be planning a memorial service here in Nashville for Maxton. It will take place on March 31st and will serve to remember Maxton with a balloon release. We will also hope to raise CDH awareness on this day due to it being CDH awareness day. I am not sure of the time or place yet (if anyone has a location suggestion let me know, I am thinking some park maybe?)Please wear turquoise in rememberance of Maxton on the 31st for CDH awareness. We continue to appreciate everyone during this difficult time.

If anyone would like to do anything in memory of Maxton, we request that you consider donating to a CDH foundation in his name. The following organizations all help families within the CDH community:

Parker Reese Foundation
P. O. Box 2199
Elizabethtown, NC 28337
Jessica Singletary at (888) PRF-CDH0
http://www.theparkerreesefoundation.com/

Breath of Hope, Inc.
PO Box 6627
Charlottesville, VA 22906
Elizabeth Doyle-Propst at (888) 264-2340
http://www.cdhawareness.com/

Global CDH
P.O. Box 209
Hasbrouck Heights, NJ 07604
(201)984-5830
http://www.globalcdh.org/

CHERUBS
3650 Rogers Rd, #290
Wake Forest, NC 27587
(919)610-0129
http://www.cdhsupport.org/

11 comments:

Dan said...

Centennial Park would would a Close And Nice park to do the Balloon Release At.
Karen Broomhead

Brad, Kellie, Lucy and Baby Carter said...

A balloon release would be lovely. We will be wearing turquoise for Carter AND for Maxton. We continue to keep you in thoughts and prayers. My heart is breaking over your loss.
-Kellie

theparkerreesefoundation said...

Y'all are in our thoughts and prayers! We'll be sporting turquoise in memory of Maxton and so many other CDH babies!

Please let us know if you need anything.

patrickjrobinson said...

I can't even begin to imagine what the both of you are going through in the loss of your baby. Mom and Dad had kept me updated on Maxton's condition and let me know what was happening. I found your blog this morning and wanted to leave you a message.

The both of you are in my thoughts and prayers and will continue to be in the coming days ahead.

Patrick Robinson

Rachel said...

A balloon release is a great idea. You guys are in my thoughts and prayers daily and will continue in the coming days ahead.

Kristi said...

Dear Ashley and David,

Patrick has been keeping me up to date on your pregnancy and the birth and what has since happened. I want you to know how sorry we are for the loss of little Maxton. I know that the memories of your beautiful son will last forever. Please know that you have our thoughts and prayers during this difficult time.

Love,

Kristi, Mike and Kayli Hurst

Cindy said...

I am so sorry about your sweet little boy.

Claire and I would like to come to the balloon release on the 31st if you don't mind. I agree with Dan that Centennial Park would be a great location.

Elizabeth said...

Definately wearing Turquoise for Maxton and many other angels and honor the families and the earthly angels too.

A balloon release sounds lovely! I'm positive Maxton will agree too!

With thoughts and prayers,
Elizabeth

April Swarthout said...

Thinking of you today and for GOD to carrying you through the next few days.

April

proudmom said...

I can't stop thinking about your loss. I am deeply saddened by the passing Maxton. He was a fighter, and I am proud to have known him through your blog. I pray that God will help comfort you. Maxton is looking down at his loving parents and he knows you gave him all you could.
He will forever be remembered.
God Bless all the CDH babies/families.

Dawn at CHERUBS said...

My thoughts and prayers are with you all in the next few days. If we can do anything at all, please let me know.

I also wanted to let you know that CHERUBS has been receiving donations in memory of your beautiful little cherub and I'll be sending you acknowledgments shortly. The donations will help a lot of families and raise a lot of research and awareness. His memory lives on through you and all you have done in his honor and now in his memory.. plus all of us whose hearts he has touched through this journey.

May God bless and comfort you right now.

(((((((((((((hugs))))))))))))

Dawn