Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Monday, August 31, 2009

Babies in the Sky

I have been working on a new website:

This website is for anyone with an angel. Much like, Carly at, I have this dream where Max is playing in the clouds. I dream that one day the clouds will spell out his name to me. As of yet, this has not happened. I decided that I wanted a picture of Max's name in the sky. Then, I wrote other babies names in the sky- some CDH, some not. I would love to honor your little angel. Please check the site and see if your child's name is on there. I still have these names to do:

Sophia and Ellie

If you are not on the site and not listed here, please email me or leave a comment and I would be more than happy to make you one.

Maxton's Tombstone

I just wanted to post a picture of Max's beautiful tombstone. I LOVE it!!!! :-)

Wednesday, August 26, 2009

Change CDH

Change CDH is a fundraiser that I am doing to benefit Parker Reese Foundation. PRF is a non profit organization based out of North Carolina that provides a home to CDH families delivering at Duke and UNC. they also provided us with tons of support during Max's life and after his death. They sent a beautiful arrangement to his funeral that made me cry when I received it. I am so proud to be a part of this foundation.

Change CDH involves collecting your loose change to help PRF! Simply put, I would like everyone to collect their change until October 31st (or you can keep it going forever!) and take the change to the bank and then write PRF a check for that amount. Pretty simple. If you would like to get others involved you can put a jar on your desk at work or anywhere for that matter. You may think that change doesn't matter, but my family has collected over $100 in the past couple of months! $16 sponsors one family per night, so change can definately make a difference!

Thanks to those who are willing to participate. I plan to do several fundraisers over the next few months (years, etc) so I understand not everyone can participate, but I would love to know who is participating! :-) Please help us CHANGE CDH!!!!

Tuesday, August 25, 2009

Prayers please!

Just a quick note to ask for you to please, please pray for Ireland and Max (Maximus). They are both on ECMO now and need prayers!!! Links to their blogs are on the right.

Tuesday, August 18, 2009


Just wanted to post an update. David and I are now living in Kentucky- with my parents. Please pray for us. :-) No, really, it is going fairly well. David is starting to get a bit stressed out because he has yet to find a job. Please pray that he finds something soon. I am currently teaching kindergarten as a resource teacher. Basically means I pull kids who are having trouble and work with them in small groups. Going good so far!

In other news, I went to my obgyn back in July due to not having a cycle since Max has been born. She gave me some progesterone which started the cycle and did some blood work. She is thinking I may have poly cystic ovary syndrome. This is not good news when it comes to try to conceive. I will likely see a specialist in October about this (as I won't have health insurance until then!) Please pray that maybe this month I will have a cycle! I never had problems before Maxton and was always regular, so I am hoping the horomone that way too high (DHEA-S) is coming down and that my ovulation will return to normal. Sorry if that was TMI. :-)

Also- please pray for Ireland as she is making her entrance today!!!!

I have also gotten Maxton's gravestone! It is beautiful! It has a big butterfly at the bottom and the four smaller butterflies. The big butterfly represents my Maxton and the smaller ones represent his angel friends. I will post pictures as soon as I can! I cried when I saw it. I miss my sweet baby soooo much.

Sunday, August 9, 2009

2 New Angels

I wrote on my blog a few posts ago about a sweet family- the Snyder's, whose son was battling cancer. It is with much sadness that I reports that Sweet Benjamen passed away yesterday. His fight was amazing and my heart goes out to his family. Please visit Benjamen's story and send his family some love.

Also, as many of you know who follow CDH blogs, sweet baby Jackson also passed away today. Please pray for Candice and Rob and their new family as the begin their journey of grief. CDH is simply NOT FAIR!!!!

Many prayers for all those families out there facing hardship. Prayers for Max's (another CDH baby named Max!)family in Florida as he is set to be born on Monday and for Ireland's family who is about to be born as well!

Saturday, August 1, 2009

What Makes You Happy?

I've been tagged by Tina. Here are the rules to this tag:

1. Mention and link back to the person that tagged you.

2. List 6 little things that make you happy.

3. Tag 6 other bloggers and let them know "They're it".

Here are some of the things that make me truly happy:

1. Thinking of my sweet Maxton. :-) Sometimes it does make me sad, but truly happy at the same time. When I think of everything I have gained because of him my heart smiles... which bring me to number 2.

2. All of my new friends. I am truly so grateful for everyone who has supported me recently. It is so awesome to have such a network of friends. Even though I have not met many of you, you are truly such a part of my life and I think of your babies/families often.

3. God! :-) Nuff said.

4. My family. My husband is awesome. My mom and dad are awesome! David's parents are awesome. I feel super blessed to have such an awesome family.

5. My new job in Ky. I am going to be teaching special ed. I will get to work with kids... what could be more happy than that!?

6. Painting and Singing. When I down, one of these things usually helps me.

What makes YOU happy?
Tag! You're it:

1. Kristi

2. Lisa

3. Marion

4. Bree

5. Jess

6. Patty

:-) Share with me what makes you guys happy, please!!!