Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Monday, March 2, 2009

Reflections of an almost new Mommy :-)

So today I have been a bit of a basket case. I am very excited about finally meeting Maxton, but everytime he kicks I wonder if it will be the last one I feel. He hasn't been too active this last week. Earlier he had the hiccups and I was wondering if it would be the last time I felt them. Despite everything I have enjoyed being pregnant.

At my first appointment in July (7 weeks gestation) , I was told that my placenta had a bruise on it. The doctor was not too worried about but decided to do a follow up ultrasound in 4 weeks. At the follow up ultrasound at the end of August, I was told that the bruise had healed but that there appeared to be extra fluid around the babies neck. It was a Wed. and they had a follow up appointment with a high risk doctor scheduled for me for Thursday. I knew it must be serious if they had an appointment for me the next day. When I went in they tried to do a nuchal fold test, but Maxton would not show them the part they needed to see. Anyways, we were told that based on the pictures of the babies neck we were likely looking at either a Down's baby or a Turner's girl. The doctor was pretty certain that the baby would be a Turner's syndrome baby. Anyways, I opted to have a CVS based on this. The Fish results came back a normal boy, as did the final results. This was the beginning of Sept. I remember how happy we were. My husband high fived me so hard my hand swelled. We felt so blessed and excited.

Then about 7 weeks later in October I was told that the baby had a possible hole in his diaphragm. I came home and googled everything I could and found CDH. It was a Friday and my follow up was on a Monday. I had read tons of things about CDH and found that when I went to the appointment I knew everything the doctor had said. I knew before they told me that my baby would have CDH. I had a sort of peace about it that I felt God would only have given me if I had to face CDH.

Of course, Maxton has also been potentially diagnosed with coarctation of the aorta. It's been one heck of a ride. I must say since the coarctation appointment, I have mainly gotten good news, which has been good!

I really feel that Maxton will be a fighter. He has made David and I so strong and even though we are scared for him, we cannot wait to have him home with us and teaching us more about ourselves.

CDH has already changed my lives. I read other blogs and I cry with strangers who really aren't strangers at all. My family has grown by at least 50 people with the addition of just one child. I feel blessed to know this people and although I wish that I didn't have to deal with CDH and that I could bring my baby home on Thursday, I am so grateful to the mothers who have come before me and to those who are currently expecting. I always felt like I wanted to work with children with cancer.. that has been my dream job. My new dream job is to work with CDH families and babies and make lives better for the CDH community. Maxton isn't here yet, but I know my purpose in this.

Please continue to pray for us. Pray for Sky and Carla who lost their beautiful son, Joseph this past week. Pray for Charlie, Davis, Addison, Oakley and other CDH babies fighting to live as we speak. I love each of this families and though I may never meet them personally they have all touched my lives in ways I cannot explain. Tomorrow by this time, little Maxton should be here. We hope to update tomorrow night so be looking. :-)


Dotty said...

God Bless you on your journey into motherhood. your attitude and positive outlook on this will make a world of difference, always keep hope and never loose your faith. Maxton has beaten odds already and touched many lives before he has been born, his journey is just begining! always in our thoughts! blessings and love from one CDH family to another.
Zach's momma

Ashworth Family said...

Maxton is so blessed to have you as his mother. I have total faith that he will be just fine. This is such an emotional and intense experience- there is so much I want to tell you to help prepare you, but it won't all fit in this little comment box. Most of all, take everything as it comes, try hard to be positive, and trust your mommy instincts. Take care of yourself, too. Even though we've never met, I can't tell you how much we're thinking about you and looking forward to Maxton's arrival. I will be checking constantly tomorrow!!!

Kenny and Jennifer Miller said...

I'll be thinking of you and Maxton tomorrow.

Many prayers,

Craig and Kristi Kuehl said...

I was thinking of you today. Waiting for an update (actually hoping) before Maxton made his GRAND APPEARANCE! I am praying extra hard for you guys tonight and am expecting nothing but good news tomorrow--if you can get to the blog to update! You are such an important part of my CDH family and I know that Kaden and Maxton will one day get to meet in person :)


Vince and Patty said...

You are such a beautiful person. You both will be great parents and he is lucky to have you to fight for him. Don't give up and never underestimate the power of prayer and positive thoughts. All three of you are in our prayers now and throughout your journey. Thank you so much for thinking of Charlie.

Jaime Smith said...

That was such a great entry and Maxton has got to be so proud already of his Mommy and Daddy! You all have touched my life in so many ways. I was so worried about you when Ryann passed away because I know how it feels to be pregnant when CDH babies lose their lives to this. Just matter what he will be fighter!! Your posts have been so positive and inspirational and that will help to guide you through this journey. I am praying EXTRA hard for you all today and I know Ryann is there with you all as Maxton arrives into this world.

Lots of LOVE! Smith Family

Jaime's World said...

We're thinking of all of you today and sending you love and prayers!
Stay strong little Maxton!
Sheryl, Tom, Jared & Jaime (RCDH-May 09')

Cindy said...

I am praying for you and Maxton today. I hope you have an easy delivery and that Maxton kicks some CDH-booty!

Fer said...

I am thinking of you and Maxton today. Many prayers!

Rhonda in KY said...

Just wanted to let you know I am thinking about all of you today and sending up lots of prayers everytime those thougts occur...which seems to be often. :) Maxton is so fortunate to have such a wonderful family. I cannot wait to meet him!

Lots of Love & Prayers
Rhonda G., (Trey & Paula & Johnny V. too)

Tracy Meats said...

Thinking of you all today and many prayers for baby Maxton! Fight Maxton Fight!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Amy AKA "Baba" said...

I'm thinking of you guys and baby Maxton. I wish no parent had to go through this journey ever again but know that you do have much support and love coming your way.


Jonathan and Sarah said...

We are praying for you & Maxton still! I would like to say the rollercoaster of emotion gets better but I don't think it ever stops until they are off meds & really on the road to good health, & even then... we're Mommies so we're always a rollercoaster of emotion! :)

Alex & Ingrid Houchin said...

We are thinking about you and your precious baby Maxton. We pray that his entry into the world will be a good one and that he won't need much support. Keep fighting little one, you've done brilliantly so far.

Alina, Ingrid & Alex

Bree said...

This is a really beautiful post. Thank you for sharing with me. I love that despite this being the most difficult event in your life, you still took the time to record this and share Maxton with the world. How beautiful. And, for you to ask us to pray for another family when you needed so many prayers of your own. You are amazing.

Another woman with a child with CDH just commented on my blog. I'm not sure if you two have hooked up yet, but here address is