Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Tuesday, March 31, 2009

Balloon Release!

Tonight's Balloon Release was amazing. Thanks to everyone who participated. There were releases in Nashville, TN- Sturgis, KY-Frankfort, KY- Louisville, KY- Pawhuska, OK- and some CDH families in Cleveland and California also released balloons. We had about 50 people at the balloon release in Nashville and about 30 at the one in Sturgis. This is a testament to how many lives Maxton touched! At the one in Nashville a stranger came up to see what was going on, so I shared Max's story with her and educated her on CDH. :-) We released 18 turquoise balloons with Maxton's name on them for the 18 days he was here with us. We also released some nice white balloons for all the other CDH babies, both heavenly and earthly. My friend Racheal took a bunch of pictures that hopefully I will get into a slide show, but for now here are few!

Today Maxton would have been 4 weeks old. It's crazy to think that just 4 weeks ago I was at the hospital about to have a baby and now it has been 10 days since he has been gone. He is certainly missed by many and I know he will never be forgotten!


Dotty said...

aw i am in tears and my heart hurts for you! im so proud of you! reaching out and spreading awareness, sharing Maxton, its amazing to think of all the lives he touched, what an inspiration!
always in our prayers!

Elizabeth said...

You all are so couragous - and that isn't an observation of mine but a great doctor said that of us CDH parents - it made the news! But your balloons - made heaven!

I can't wait to see all the pictures!

With thoughts and prayers,