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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Wednesday, March 11, 2009

Chest Tube- Take 2

Apparently sometime this afternoon Maxton developed another air leak in one of his lungs, so this evening a second chest tube will be inserted. His settings pre leak were down to 28 on the vent with a mean of 12.5 (where they are wanting it) and his oxygen was at 67 (it was at 58 but due to weaning the vent they had to go up a little on the oxygen). The air leak was noticed because he was starting to split in his sats and when his RN went to check on him (by the way I LOVE his nurse) his tummy looked pretty full. So after they did a chest X Ray they confirmed that he was leaking air. Luckily, his settings were only minorly adjusted on the vent to get him back to not splitting. His vent is now at 32 and the mean is 13.5. His oxygen is at 96 though, but I am hoping after the second chest tube they will be able to come down off of it some overnight. My poor guy keeps getting these little "glitches" but hopefully he will continue to well with the weaning. They also weaned his dopamine slightly today.

This morning the doctor called him the amazing shrinking baby. :-) He is ALOT less swollen today than he has been and sort of looks like he did after he was born again. Another doctor commented that it was nice to see a baby in there again. :-) The docs were pleased with the weaning and Max's ability to tolerate it, so if we could just get these little leaks under control I think we would be much more comfortable. I gave him a pep talk so hopefully he will listen to me and be good for the nurses and docs tonight.

On a sad note, please pray for Marion and Jason as their precious daughter Addison lost her fight with CDH today. It brings home the reality of just how lucky we are to still have Maxton with us and just how serious his condition is. I have faith that God is answering prayers and we appreciate everyone thinking of us but if you could, please pray for all the other CDH babies as well. The families listed to the right (and many others that I havent had time to put up) have been so supportive. If you are bored, check out their blogs as well.

12 comments:

Kenna said...

I know you guys can make it through all these 'little glitches'! I can't wait until you get to hold your little man!!

Carissa said...

Thanks for your words of encouragement. I am thinking of you guys. GO MAX GO!

Craig and Kristi Kuehl said...

Keeping you guys in my thoughts and prayers! It's been a rough day for the CDH "family" today. Please, FIGHT MAX!!! Your little guy is amazing...wanting more baby steps in the right direction! Just know we are here if you need us.

Keep the updates coming--no matter how small :)

Tracy Meats said...

Max is one strong little boy!! Keeping fighting Maxton and we are praying for you. I hope he has a stable night and the chest tube #2 will help out a lot. So good to hear that the swelling is coming down...he is making progress. Have a good and stable night Maxton and I look forward to tomorrow's updates.

Sending you lots of postive thoughts and energy, Tracy Meats - mom to Ian, born with a LCDH on 4/3/04

Elizabeth said...

Okay Max - your doing wonderfully! Lets keep these leaks under control and we can get your organs where they are to be. Cool kids don't have their intestines next to their lungs. Just isn't a good idea!

Keeping you all in my thoughts and prayers and sending Max Lung Function chants,
Elizabeth

Alicia said...

Praying for Maxton...and looking up where miracles happen!

Joseph's "Grammy"

Fer said...

I'm keeping you in my prayers.

theparkerreesefoundation said...

We are praying for y'all and especially for Maxton. I know that the ups and downs of the CDH are hard to handle. Just know that we are here.....

Alex & Ingrid Houchin said...

We are praying for Maxton that the new tube will help him stabilise. His is such a little fighter! Hang in there little Maxton!


Hugs from the UK,

Ingrid, Alex & Alina

Liz Rich said...

Praying for precious Maxton!
Liz
Mom to Par (LCDH, 11/1/07)

proudmom said...

I am praying hard for Maxton. He is a brave boy. Fight hard Max, your strength and bravery are amazing.

God Bless all the CDH babies/families.

Marion said...

I will tell you to enjoy each and every day with Maxton. He seems to be a tough little guy.