Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Sunday, March 15, 2009

New Pictures!

This is from last weekend when little Max was about twice his birth weight!

So swollen.. luckily he was able to pee alot with the help of some lasic. :-) Note the cute little hairdo.

His lovely nurse turned him on his side on Thursday and he looked so comfy! Note the shrinking baby in there. I was excited to see he has elbows.

Sucking on the breathing tubes.

Sleepy time.. of course if you were on 3 sedatives you would be sleepy too.

Family picture from yesterday. We are so proud of our sweet baby boy!


Sky + Carla said...

Gorgeous family photo! He looks so comfy on his side :) It looks like he likes it.

~ Carla - Joseph's mom (2.3.09 - 2.26.09)

DJ said...

Looking GOOD! Such a shame the ET tubes don't come in baby-favorite flavors! Love the photos...we appreciate the time & effort it takes to keep us all informed, and we love you for it!
The Joneses

Stephanie said...

It's so good to hear and see that he's getting less and less swollen. And don't worry about him opening his eyes for mama. He hears your voices and feels your touch and that's enough for him now. The pictures are just amazing!!! We love reading your updates.

casau said...

thank you for the update. you have so many other thinfs to take care but you still share w/ us! prayers for everyone!

Alex & Ingrid Houchin said...

Love the pictures! Maxton is doing so well! Well done little one!
We are praying for you.