Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Monday, March 16, 2009

Surgery Date

Today we met with the doctors during rounds and apparently Thursday is surgery day. It was either Tuesday or Thursday because those were the only days with enough time on the schedule to move the surgery room to Max's NICU room. The doctor said they picked Thursday so they could fine tune things until then and get everything ready. Max is doing good. His vitals and sats look good. The delta p is weaned to 25 with a map setting of 13.5, but Max has it running at about 12.3. The doctor was asking the attending why this would be and the attending said that it is because they turned Max yesterday and his good lung is up so the machine isn't working as hard. Max is breathing pretty regularly and I love watching it. They are planning to wean his nitric today until he can't tolerate it. This morning it was set a 5 (actually 4.5). They are thinking he will let it go to 3, but not below that. I think it would be awesome if he could tolerate not having it at all. His oxygen setting is at 46. :-) I am SOOOO glad! He is such a little fighter! Anyways, keep little Hoss in your thoughts! I am worried about how he will react after surgery, but hopefully he will be just fine.


Jaime's World said...

This is WONDERFUL news, thanks for keeping us up to date!
Hang in there little Maxton, we'll be praying for a quick post-up recovery!
Thinking of you,
Love and Prayers,

Craig and Kristi Kuehl said...

That is such fantastic news! The prayers are working and Max is fighting so hard. Keep up the GREAT work, Max!!

Rachel said...

That is awesome news. Thanks for keeping us up to date. Thinking of you.

Tracy Meats said...

Will be praying for a successful surgery on Thursday and Maxton stays pretty stable after surgery and has good days ahead of him. Maxton is such a fighter and so strong!! Thinking of you and your precious son.

Hugs, Tracy - mom to Ian

Kenny and Jennifer Miller said...

Wow, Maxton is SUCH a strong little fighter. I'm so very impressed at how hard he's been fighting. He is kicking CDH to the curb!! Keep it up Maxton!!


DrmCtrsLtSl said...

way to go max, keep fighting awesome boy and i will continue to pray for you especially on thurs as it is my brother's birthday as well. it you have time check out
love you all as alawys.

Elizabeth said...

Keeping you all in my thoughts and prayers - come on Maxton - your doing well.

Don't worry about surgery now - just know that this is what must be done to get him over that hump - and back home with you. Keep your eye on the prize! Maxton is!


Rhonda in KY said...

I'm so glad we keep getting good news! Kick butt and take names little man!

Still sending the love and prayers your way...

Jaime Smith said...

I am thinking about you and praying for you every day. Maxton is such a little fighter!! Stay strong and keep your head up, he needs you right now. When you start to worry, just pray, it helps!

BTW, of course you can use Ryann (her big sister is going to be jealous) as long as I get a book :)

Love, Jaime, David, Reggan, and ^Ryann^