Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

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Tuesday, March 10, 2009

"Why Rock The Boat"

When I went back to see Maxton late this afternoon the doctor was back there because he was having a "mini episode". He quickly recovered (with the help of little pain meds) . The doctor said they were pleased with the way Maxton was able to now self regulate during an episode without a lot of fluids and also pleased with the way the weaning was working. In the time since the morning, they have decided not to do anything about the air link at this time. Tomorrow may be a different story, but for right now the hole will just be there and the air will be drained later. Maxton has been weaned down to 69 on the oxygen and also further weaned on his pressures on the vent. The next thing is to wean the other vent setting ( I am honestly not sure what it does, but I know it is set right around the maximum). Basically they are suprised his still tolerating weans with the leak and the doctor said since he was doing well with it "why rock the boat". I am praying that Maxton continues to tolerates the weans throughout the night. He is also getting some good doses of lasics and seems to be putting out alot of the fluid that has accumulated. The doctor said today that Max was probably double his birth weight. I think he may have forgotten that he was a big boy to begin with, but I would say he has several pounds of extra fluid right now that needs to go away before they can do surgery. Here is to hoping for good night and good day tomorrow. Thanks for the prayers, they are definately working.


Burt and Christy Michel said...

Way to go Max ! Continuing the prayers. Make sure to take care of yourself also:)

Tracy Meats said...

Keep fighting Maxton!! Many continued prayers you have a stable night and keep tolerating the weaning on the vents and oxygen. Have a good night big guy and hope your mom and dad have more good news in the morning.

Hugs, Tracy

Craig and Kristi Kuehl said...

Keep fighting Max!! We are all praying for you:) It really does sound like you have your own agenda--but we will take whatever works!!