Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Thursday, March 12, 2009

Uneventful day

I am almost scared to post this, but so far today has been relatively uneventful. Maxton continues to allow the doctors to wean his meds and settings, which is exactly what they are wanting to see. :-) His delta p (vent) setting is down to 24 with the mean on 13.5. His oxygen was down to 62 when we left, but they are turning it down every hour as long as he tolerates it. Today they also weaned one of his blood pressure meds, dobutamine from 20 to 10 and they may continue to wean overnight. I am so proud of him. I had a pep talk with him and he is doing so well with what the doctors are wanting to see. There is talk of possibly doing his hernia repair next week as long as he continues to do well and gets some more of the fluid off of him.

Today his super great nurse was able to turn him and now he is laying on his side. The only "hiccup" today was that he has a small bed sore on his bottom where he was laying in the same position for so long. Poor little guy. He now has some meds and dressing on it, so it should heal in about a week. I am hoping that he is able to continue to tolerate the weans. :-)

Oh yeah, I forgot to metion that they never did put in a second tube. The doctor felt it was unneccessary due to Maxton tolerating the leak very well and continuing to be weaned off of meds. Hopefully this leak will not interfere with the weaning tonight. His tummy looked much less "ballooned" today so some of the air must be getting out the other tube.

As always, thanks for checkin in on us. We really appreciate everyones support during this difficult time. David and I are already learning so much and growing so much. It's amazing what one little guy can do!


Elizabeth said...

This is good news! The thoughts and prayers are working! The pep talks too. Rest Mom! He needs to do that too.

Keeping you all in my thoughts and prayers and sending Lung Function chants to Maxton!

Rachel said...

Ashley that is awesome news. The thoughts and prayers are working. Keep up the pep talks. Keeping you in my thoughts and prayers and sending lung infection chants to Maxton!!! Love you guys,


Tracy Meats said...

Maxton is strong and fighting!! Keep up the good work and the surgery repair could be right around the corner. Many continued prayers for your little warrior.

Hugs, Tracy Meats - mom to Ian

DJ said...

We waited anxiously for your news of the day, and we were both so very glad that you had good news to share with us! Your family is precious to us all, and we're thankful that you have found a way for us to rejoice, pray, and share in your journey. Keep up the great work you're doing! Love you bunches & always!
The Joneses across the way