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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Saturday, March 21, 2009

Silo

So Maxton now has a silo. Plan A did not work and things got very bad, very quick. While waiting for surgery to come up to Maxton he coded- his heart stopped and he quit breathing. Luckily, the surgeon arrived as this was happening and opened his incision and after 10 minutes of chest compresions, his heart restarted. All of this happened in a matter of about 30 minutes. His heart is now beating but his oxygen is not too good. For a while it was running in the 50s-60s ( and for a brief time much lower than that), which is why they decided to do the silo. Max is very purple, but is starting to regain some of his color. The next few hours are very critical, as he has alot of acid in his system. His level should be less than 1 and it is at 14. There is risk that this could poison him, but they are giving him a lot of fluid to hopefully combat this. There is also risk that he could desat again or his heart could stop again. Right now his oxygen is in the low 80s pre and the 70s post. They think after a few hours the numbers should be getting closer to each other. I am holding it together as best I can. My little man has been through so much but he is clearly not ready to leave us just yet. I am praying that God has plans for him that involve and nice long life with his loving parents. David and I are staying at the hospital tonight to be near him in case he has another bad episode. We appreciate everyones prayers and know that this what has kept Maxton alive. Every time I see him I remind of everyone praying for him and how much love people are sending our way.

17 comments:

Ashworth Family said...

Wow. I know you must be terrified. We are thinking of you as always and hoping the silo is the answer and that all the other issues level out very soon. Lots of prayers are coming your way tonight!

Amanda said...

Just wanted to let you know that I'm still thinking about you and your family. Hope the silo works well and is just what Maxton needs.

edensgate said...

All the Chattanooga branch of the family is constantly thinking of you and praying for Maxton. We read your blog each day so we don't bug you with phone calls, but we want you to understand that we are very concerned . Thinking and praying for you always. Love, Grandma, Chris, and Leslie

Tracy Meats said...

Hold on to one another and cherish every moment with that warrior of yours. He is one strong little boy and I am praying hard for Maxton to have the strength to fight. I hope he has a restful night and things look better tomorrow, even better as I type this. Sending you tons of love and prayers during this very difficult time.

To Maxton, you are one sweet little boy...keep fighting and showing the world your strength and determination. Your beautiful parents are by your side and they love you so much. Stay strong Maxton.

Thinking of you, Tracy - mom to Ian

Jaime's World said...

Oh No, another set back! I think we're all learning this is the way that CDH works...stupid CDH!
Hang in there, many prayers are going out to all of you. We hope that someone up above is listening and that they are answered.
Take care of yourselves!
Wishing you all the best this evening.
Hang in there Max, we all promise that things will get better if you can just hold on a little longer!
Love and Prayers,
Sheryl

Jonathan and Sarah said...

WE are praying for big man Maxton! I will be asking for prayers on our blog too!! God is watching over your little guy..

Stephanie said...

Maxton remains in our hearts and prayers. I hate to hear about the set back, but sometimes, they have to get worse, before they can get better. Stay strong for Maxton. He is so loved!

Love, Stephanie
Kamryn's mommy

DrmCtrsLtSl said...

Oh Max, hang in there buddy, you can do it, I know you can, God does too. I'm praying for you and your mommy and daddy. I love you guys. Come on little boy, fight, fight. You may have just started the race of your life but I sure as hell know you can cross that finish line in first place. No race is easy, baby steps love, just as long as you win :) Love you. Hugs, Kisses and many, many Prayers.

Dan said...

Im praying Max can continue fighting as hard as he has been,If yall need anything at all Just call. WE can bring lunch or anything if you dont want to leave Maxton. Karen Broomhead

Kenny and Jennifer Miller said...

Lots of prayers are coming your way for Maxton tonight. Hang in there guys!

The Millers

Dotty said...

sending a ton of prayers for your lil man, he is a fighter, thats for sure. hang in there momma, knowing your there will help him heal faster. hoping he recovers quickly and has nothing but great news from here on out!

DJ said...

As you know, many heartfelt prayers are coming your way from the "big city" of Henshaw. God's hands are big and loving, and He will hold your family through this night and trying/terrifying times, just as He has held you through the better moments when you had comforting signs of progress. May you see more joy coming your way through this night and in the morning as Max hopefully will improve. We love you!
the Joneses

Craig and Kristi Kuehl said...

Prayers for all of you to remain strong. I wish for all of us it wasn't this hard. Max has been in my thoughts all day and hopefully the silo will do the job and he will become stable again.

TONS AND TONS OF PRAYERS FOR MAX---FIGHT!

Kenna said...

Ashley we wish we could be there! Mom and Dad are here in San Antonio with me. We are being updated every time Lissa hears new information and we are ALL praying for all 3 of you. You are all sooo strong! We love you all so much. Love and prayers!
-Kenna and Mom & Dad

Irvin family said...

WE are praying for Maxton. Stay strong he needs you to be strong.
Lots of prayers coming to you from the Irvin family

mummy to angel SKYLA said...

Lots of prayers for Maxton and his family. Hang in there mum and dad. He is a fighter.

Kristy, mum to Angel SKYLA, LCDH
http://skylacdhbaby.blogspot.com

Rhonda in KY said...

Mom & I have been checking in with Maxton's blog off and on all day. We continue to pray for all of you and especially for Maxton.

Lots of love and lots of prayers from Rhonda, Trey, Johnny & Paula.

Hang in there little man!