Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

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Sunday, March 15, 2009

A Wean Away

First off let me be a typical mom and just say that Maxton is soooo amazing. :-) Yesterday and overnight he was doing well with the nitric oxide weaning so it is now weaned down to a setting of 5, which is as far as they are wanting to wean. Everything else is pretty much where they want it pre surgery so the only plan for today was to try to wean his oxygen some more. They are pleased with where it is but I think they are figuring if they can wean it some more, why not? It is at 55 this morning and the plan is to wean it until it gets to 40 if possible. I am so proud of my little man and think he is just letting them wean away. As far as surgery goes we aren't sure when it will happen. The nurse said that she thinks it will be either tomorrow or Tuesday. As of now, it is not on the schedule, but hopefully we will know more tonight.

In exciting "mom" news- Yesterday I was able to clean out his mouth with a little antibacterial swab. I thought for sure he was going to flutter open one of those little eyes, but never did. His eyes have not been open yet due to being on so many pain meds. Well, today that little stinker opened his eyes. Of course he waited until Momma left to go get some lunch. I had cleaned out his mouth again this morning and he made some really cute faces and tried to move his arms and legs. Then he started sucking away on his breathing tubes. He looked so cute. I stood there for about 30 minutes staring at him hoping he would open those eyes. I could see his eyes moving behind his eyelids, but nothing. So I resigned myself to the fact that he was not going to open them because he was just on too many pain meds. Then when I came back about an hour later I was informed that they had opened and he had looked around a little then closed them again. I tried to clean out his mouth again in the hopes he would open them back up, but alas, nothing. I am okay with this, but sure would like to see those pretty baby eyes looking up at me. Maybe tonight when his dad gets off of work and we go over there he will open them for the both of us.


Tracy Meats said...

Maxton is amazing!! Many continued prayers he continues to do so well with all his weans on his support. You will get to see those eyes open when you least expect it. Leave a disposable camera by his bed and I am sure the nurses will be able to catch it on film for you next time, if you are not there. Hope Maxton gets to have his surgery this week. I love the new family picture taken--beautiful!

Hugs, Tracy Meats - mom to Ian

Sky + Carla said...

GREAT, GREAT news!!!! Maxton is definitely a fighter.

We are praying for him and I know Joseph and Addison are watching over him and helping him fight :)

Keep us updated about the surgery.

~ Carla - Joseph's mom (2.3.09 - 2.26.09)

Rachel said...

I am so delighted to hear that he is doing so well. Many continued thoughts and prayers that he continues to do well.