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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Thursday, March 5, 2009

Keep Max in your prayers

Overnight I called a couple of times to check on Max and his sats were splitting, which is not good. Sometimes his oxygen is at 97 and sometimes in the 80s or 70s. This morning he had an "episode" and was pretty hard to get stabilized so I was trying to get discharged so I could come over here and be with him. Well, when I got here he had just had another episode and they were working with him to get him stable. Right now they are giving him some blood since some blood work showed he was predisposed to bleeding. They also talked with us about ECMO. It looks like he may be on it by this evening, obviously we are really hoping not but know that if that is what the doctors feel is best then we will be okay with it. They are also in the process of changing him to a different vent so hopefully that will help and he will become more stable. He is still either trying to breath over the vent or getting hiccups alot. When I was back there it looked like he had the hiccups so I asked and the RN told us that they have been trying to figure out if it is him trying to breath or hiccups all morning.. she said they just aren't sure. I think that is about all for now. I am officially discharged and will be over here for a while, but will hopefully be able to post some pictures of Maxton later today! Please keep him in your thoughts!
Ashley

13 comments:

April Swarthout said...

I have been following your story for a while now and I am praying for Max. Would love to see pictures of your little hoss:)

April Swarthout

http://stetsonbryantswarthout.blogspot.com

Liz and Shane said...

we are praying for Max. stay strong.

Alisha said...

Love you guys and have praying daily for you and Maxton. He's a strong little hoss and I pray for a short hospital stay and hope he gets home will soon.

Cindy said...

I'm praying for Maxton. I'm so glad you got discharged and can spend more time with him now. I hope they don't have to put him on ECMO, but if they do then I hope it gives his little lungs a chance to rest and heal so that he will be stable for surgery. Please let me know if you need ANYTHING since I live close by.

For what it's worth, Claire had tons of hiccups the first week up until her repair surgery. I have no idea why or what they mean though.

Fer said...

hley, I am praying for little Max!

Ashworth Family said...

Davis had and continues to have hiccups a lot too, and his initial sats would also dip way down like Max's are doing now. We were also told that Davis would need to be on ecmo, but he turned himself around... they can do that :)

We are of course thinking of you & Maxton everyday.

Lisa said...

Hang in there Maxton! I would also like to avoid the ECMO but the doctors at MN Children's say nothing but good things about it, basically it can be a lifesaver. So try to look at the positives of it, he will get some needed rest.

Burt and Christy Michel said...

Saying tons of prayers for little Max !!!

Jaime's World said...

We're praying for all of you. Hang in there Maxton!

Love,
Sheryl & Family

Rhonda in KY said...

Been thinking about you all lots today. Lots of people back here in UC are sending up lots of prayers for you all. Lots of people have been checking in with and checking on "Pappa John" too.

The lunch ladies send their love & prayers too.

Continued love & prayers,
Rhonda & Trey, Paula & Johnny

Craig and Kristi Kuehl said...

Oh Ashley, hang in there. I am praying for Max, and praying that he will hold steady, but if he does need ECMO, than that is what is best for his situation. Alot of CDH babies do great after being on ECMO. It gives their little bodies the rest it needs sometimes. Stay positive and kiss his little head for me--softly :)

I am thinking about him all day and asking God to carry him thru this.

Much love, support & prayers!

Tracy Meats said...

Praying hard for your little boy and your family. Continue to stay strong and positive and little Maxton, fight baby fight! I have nothing but good to say about ECMO--ECMO saved my son's life. If ECMO is needed, it will give Maxton's lungs and heart time to rest and heal. Hopefully, with the vent change (is this to an oscillating?) you will see some improvement. I hope he has a better night and things turn around and he remains more stable. I can't wait to see pics of that precious baby.

Sending you lots of love and positive thoughts and energy, Tracy Meats - mom to Ian, born with a LCDH on 4/3/04

Kenny and Jennifer Miller said...

I'm praying for Max and for you guys too!

Jen