Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Tuesday, March 17, 2009

Happy St. Patrick's Day!

Happy St. Patrick's Day! :-)

Had to make sure MAxton has on some green... not to mention keep his little feet warm.

Maxton with a miniature plush version of Charley Dog (his big brother!)

Some of the high tech equipment in Max's room.

This is the full version of Max's room. I had trouble getting it all in the picture!

Today was a good day. When we left the hospital tonight Maxton was still breathing a little over the vent, but not as bad as before. His heart rate is a little better. His nitric was weaned to 1.5 and his oxygen was at 46. :-) I am sooo proud of him. He is such a trooper. ( I know I say that every time, but it is so true. ) He was moving a lot tonight but they had just changed him from the fentanyl to the morphine. He kept raising one arm. It was almost like he was trying to wave. :-) Not much else to update. Surgery is still set for Thursday. Hope everyone had a good day!


Liz and Shane said...

He looks so cute in his green socks. The dog looks real. Maxton is in our daily prayers. I drank alot of chamomille tea before Nayeli's surgery. I know you must be getting nervous. We are praying his surgery goes well and he keeps fighting. He is a trooper!

Rachel said...

Ashley Maxton looks so adorable in his green socks. We are so glad to hear that he is doing good. Maxton is in my daily prayers. All of my co-workers at the library are praying for him too. He is a trooper. Love ya and keep up the pep talks.

Marion said...

He looks adorable in his little green socks. Also, I want you to know that I would be honored to have Addison as one of the angels in the children's book for Maxton. When you are done, will you send me a copy. Also, I will keep Maxton in my prayers duirng his surgery!

DrmCtrsLtSl said...

awesome maxton, way to go. the green socks are so you buddy! love your bed mate. oh and you look soooooooooo buch better!

Jaime's World said...

What a doll! I LOVE the socks!
Perfect for St. Patty's day!

We're so happy to hear that Maxton is hanging in there. Good Luck with surgery tomorrow!
We'll be thinking of you and praying that all goes well.

Love and Prayers,