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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

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Friday, March 20, 2009

Little Man

Maxton is still looking pretty good. He is obviously pretty swollen, right now mostly concentrated to his abdomen. They have been weaning his oxygen tonight and he is down to 73 (or was when I left). They will continue to wean throughout the night if Max's blood gases look okay. So far they have looked good and improved throughout the day today. By no means does this mean he is "out of the woods" but I am definately encouraged that they are able to wean some things. They have been giving him blood products because he is draining quite a bit through his chest tube and because he lost some during surgery. However, I think they are planning to stop/slow down because he blood pressure is getting a little too high. They are trying to keep it above 50 due to the potential for his pulmonary hypertension to worsen after the surgery. When I left it was running in the low 70s. I think they would prefer it to be in the mid-low 60s or high 50s. His heart rate was in the 130-140s. He was satting 100-100. His delta p was at 33-34 and his MAP was at 14.0. I am praying that he can keep this up for the next couple of days. I am so inspired by him and can't wait to scoop him up and giving him little kisses! Thanks for checking in on us.

9 comments:

Sue mom to Emily LCDH 1-22-08 said...

Way to go Maxton. Keep up the good work!!!

DrmCtrsLtSl said...

Way to go Max! Continuing to pray. Love you guys. Love the updates :)

Jaime's World said...

Wow, this is great news! Awesome job, Maxton!
We're sending nothing but good wishes your way!
Keep up the weaning little guy!
Love and prayers,
Sheryl

Elizabeth said...

Maxton you are amazing.

Keeping you all in my thoughts and prayers,
Elizabeth

Cindy said...

I have been thinking of and praying for Maxton especially hard today. I am so glad he was finally able to have his repair surgery and that it went well. I hope he remains nice and stable and that you get some rest tonight as well, as I know you have had a hard day of worrying.

Dotty said...

im so very happy for you and proud of Maxton! way to go!!keep on fighting!!

Ashworth Family said...

Way to go Maxton! Keep up the good work. We are praying for you right now.
Go Hoss....

Brad, Kellie, Lucy and Baby Carter said...

Keep it up big boy! Carter sends a High Five.

Rachel said...

Ashley keep us posted on his progress. You are in our thoughts and prayers. God is great. Love ya
Rachel