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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Saturday, April 25, 2009

Children's Book

So, it has been suggested by about 10-15 people that I need to write a book, more specifically a Children's book. I decided yesterday when my nurse at work said it, it was clearly God reminding me that this was something I needed to do. I saw down this morning and in about 20 minutes (no joke- god is so good) came up with this. Seeing as how Max is my only child, I am needing suggestions from those with children, if the content makes sense to a child or would be too scary. Let me know... and please don't plagerize my work or I will come after you. hehe. :-)

"Baby Maxton earns his Angel Wings"

The day baby Maxton was born, he knew he would have to fight.
Because some things inside of him were not working right.
But Maxton was a warrior, right from the start.
His mommy and daddy were so proud of how hard he fought.
He would fight and fight his illness with the help of his friends
Who were angels in heaven watching out for him
There were Ryann, (another angel- waiting permission), Addison, and many, many more
With their special help, Maxton tried to win his war
But his illness was too strong and tough for him to beat
And God decided it was time for he and his angel friends to meet.
Mommy and Daddy and many others cried
The day that sweet Maxton left their side
But they know that Maxton earned his angel wings
And now he soars above with the angels and sings
He's watching out for family, for friends, and for you
And making sure we're safe in all that we do
And if your dear sister, brother, or friend
Earns their angel wings too, and joins him
He and his angel friends will welcome them and play
And listen anytime you talk to them or pray
Remember they are all in heaven watching from above,
Laughing and playing, and sending down their love.

14 comments:

Alisha said...

I love it! I've been talking with Micah a lot about this and she would totally love the book. Are you wanting to do a book with just poems or start there and then branch off with moe short stories? I'd be more than happy to "lend" Micah to you as part of your study group. ;)
Love ya!!! Alisha

Maxton's Mommy said...

I am planning to do maybe a series of books kind of like this.. with pictures and things. I think I have someone who will do the illustrations. Just wondering if the content is child appropriate and if it would make sense. :-) I have also toyed with writing a more "grown up" book too, so we will see..

Brad, Kellie, Lucy and Baby Carter said...

That's fantastic! I'll pass this link along to my friends with kids and see if they have any suggestions.

Owain's mommy said...

I love it!I think this book is child appropriate working with children for the last fifteen years I think they will understand.I think this book could help children who have lost a sibling.

Amber

Ashley and David said...

wow thats amazing!

Jonathan and Sarah said...

Beautiful job! I did one but for Noah's story & had it bound (snapfish.com I think) just for us so we could read him "his story" in kid terms, then in the back I included all the email updates we sent to our prayer partners during that time so he could see what we were praying for & how it was answered by the next email. I think doing a children's book is great idea though!

FaithCDH said...

Great work! That is simply amazing!!! Maxton is soooo proud of you. Wishing you the best of luck with the book. I think it will help many families and children.

Tracy Meats said...

LOVE your idea for the book and think you will do great with the book and I think it is very child appropriate for children maybe 5 and older and it makes perfect sense!! I say 5, because Ian understands things like this, but I know my 3 year old may still be confused. Maxton is so proud of his mom! I think you could come up with some pretty illustrations too. My kids love to look at the pictures too and what you have written will allow parents to interact with their kids with questions they may have. Awesome job!!

Tracy - Ian's mom

Liz and Shane said...

great idea on your book.

Stephanie said...

I love it. I would read it to Hollie, but she's still trying to deal with the fact that Kamryn could pass once she's born, so I think I'll hold off on reading it to her. But, I do think it's an awesome book for children to read. Not only to those who aren't immediately affected by CDH, but to get the awareness out there. Another idea would be for the books to be avaible to order through you, and have their own cdh angel baby's name inserted, to make it more personable. And that would make it a little bit easier for the siblings to understand. You're very talented and you should be so proud of yourself for writing this book. What a huge accomplishment.

Love,
Stephanie

Ashworth Family said...

You are amazing. This is perfect, fabulous, awesome!

Jaime's World said...

Ashley,
This is beautiful! I'm sure Jared would love it if I read it to him. (I haven't as we're still trying to cautiously proceed with Jaime.)
Your next project could be about being the mother of a CDH child. I bet you could find sponsor's for the book....actually both the child's book and an adult one if you choose to create one.
You are so incredibly talented! I admire you so much!
Keep up the wonderful work, it is not only therapeutic for you, it is for all of us, as well!
God Bless,
Hugs,
Sheryl

Michael and Elizabeth Reeve said...

I think this is beautiful....I want a copy for my neice!!!

xx

Chanda D Brady said...

I really love your idea and wish you luck. I wanted you to know that I spent a few hours last night reading your entire blog. Your honesty and talent for writing was so evident. .... My Ireland had a good day of tests yesterday and being pregnant, it's so hard to comprehend that there is something seriously wrong going on. ...I love that you have a commitment to get the word out on CDH. It's an unfair disease and seriously unfair that it's so unknown. I love your idea and will totally pray that you receive any and all help you would need to succeed.
Chanda