Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Wednesday, November 26, 2008

Doctor's Appt.

Today I had another appointment at Vanderbilt. This one actually went better than the last and I was/am more comfortable with them. I talked with them about Dr. Piper wanting me to find another OB which they thought was odd, but called their private practice and got me in with them. I had an ultrasound and everything is still looking the same as last ultrasound. The only thing new they talked about (but said was present on last ultrasound) is that there is something behind the heart on the right side that is showing up cloudy on the ultrasound. The doctor said it could be bowel that has made it that far over and kind bunched up, or it could be lung tissue. She said it didn't look like normal lung tissue and that she could see some normal looking lung tissue next to it, so she wasn't sure exactly what it was. She said that an MRI later in the pregnancy would likely tell us what it is, if it is still there. She said they would watch it, but not to be too concerned. I did get to see some pictures of Maxton's little face. :-) He looks so cute. We also got a good profile picture of him. He was waving his arms all around during the ultrasound.

After meeting with the doctor, I met with the a geneticist. I would have liked for David to have been there. We were supposed to meet with this person last time but she had to cancel. They had said they would reschedule but didn't tell me they had scheduled it for today. Anyways, we talked about the possible causes for CDH and she explained that Max may need some genetic testing after he is born if signs of other things are present. I was already aware of this so there wasn't too much new information there. I did like talking with her and trust that if there are other issues that we will be well informed. That's it as far as they appointments go. Nothing much new.

On another topic, I am trying to decide whether or not to take birthing classes. I'm not sure how I feel about them. I don't think that David will like to go, just not his thing. Also being surrounded by mothers with a normal pregnancy and being asked alot of questions doesn't seem too appealing. However, I always thought I would do birthing classes, so I don't know. I guess I need to decide soon because it is almost that time.

Well, I hope that everyone has a good Thanksgiving. This year has been difficult for us between trying to move to KY and not getting jobs that were very promising to learning about Max's condition (not to mention the other scary things we had to go through during this pregnancy before the CDH diagnosis). However, we need to remember all the things we are thankful for. I am planning to go out and buy a nice book that we can use every year to write some of the things we are thankful for. I heard someone talking about this tradition on the radio and I think it sounds great. :-) I am trying to find all kinds of traditions to start so that Max will have things to look forward to. If you have any traditions for the Holidays let me know- I might steal them. :-)



Amanda said...

About the birthing classes--you wouldn't necessarily have to share any details about your pregnancy, unless you wanted to. I went to classes, and I felt like I benefited from them--they'll give you information about what to expect from the actual labor and birth. On the other hand, the information that I got is readily available from any OB or from the internet, so if you'd rather not go, then you shouldn't worry that you're missing something!

Amanda said...

Oh, I thing that I really appreciated about the birthing classes--a tour of the hospital. But you could request that without taking classes, I'm sure. Okay, no more comments...I wrote you a novel!

Liz and Shane Nelson said...

I signed up for the birthing classes. I had second thoughts at first but we decided to sign up and we are glad we did. Other couples ask questions aboutn due date and gender that is about it. I hope you decide to sign up and try to be positive. I had a hard time thinking of our pregnancy as normal but sometimes it helped and made me happy doing everything that everyone else does when pregnant.
Maxton is giving you great signs that he is active and ready to kick CDH booty!
We are praying for you.

Katie said...

I love the idea of the book of things to be thankful for...great idea! I'll keep your little sweetie in my prayers.

simplyafarmerswife said...

We are keeping your family in our thoughts and prayers!