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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Monday, November 10, 2008

4 months

So I just realized about an hour ago that Maxton will be here in 4 months... well his due date is 4 months from now, but they are planning to induce so he will probably be here in less than 4 months. That is CRAZY to me! It's scary to think about how different my life will be in such a short period of time. I am definately excited but also terrified. I am trying to be strong and think I am doing good with everything, but I still have days where I am so scared for Max, and for David and I. Anyways, just wanted to share that little Max will be here soon... well, it's soon to me. :-) I hope by then his little lungs are ready to fight (and maybe aren't so little. :-) )

9 comments:

Dotty said...

from one CDH family to another, i want to extend my warmest wishes to you and my blessings! this is a hard road and an uphill battle at times, but your strong, and remember to keep faith, God has a plan. our son Zach was born last oct and just turned one, he had left sided CDH and was born at 33 weeks due to polyhydrominos, due to him not swallowing any longer. he was placed on a vent for 2 months, and had many other issues arise from everything, but he is here with us, and he makes each day brighter. he has given us so much, pride, respect, inspiration,determination, insight. please feel free to contact me if you want, i found your info from BOH website. my email is roses4me777@yahoo.com and our carepage (blog) is at www.carepages.com, you will need to sign up, its easy and free, and our page name is Zacharydavis no spaces. we will keep you and Maxton in our prayers!!! stay strong
Zach's momma
Dotty

Brad, Kellie, Lucy and Baby Carter said...

Welcome to the CDH Family. I hate that you have to be a part of this family, but it's a wonderful and supportive one. I saw your post on BOH and wanted to wish you the best with your journey. We're right in the middle of ours with Carter and certainly filled with huge ups and huge downs, but you WILL get through it. Try to stay positive for Max and we can't wait to meet him. Please don't hesitate to contact me if you have any questions or concerns. kzmyers@yahoo.com

Carter's mom, Kellie

Fer said...

Many continuos prayers for you and baby Maxton :)
Fer
CHERUBS Mexican Rep.

theparkerreesefoundation said...

Baby Maxton is constantly in our prayers and thoughts. Please let us know if there is anything we can do for your family.

Tracy Meats said...

Many continued prayers for you and your family, and especially baby Maxton. CDH babies do amazing things and have such a will and fight within them and Maxton will amaze you too!! Stay strong and before you know it, your little boy will be here. Hugs!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Liz and Shane Nelson said...

Have faith in God and don't give up hope. Stay positve and God will give you the strength.

casau said...

trust what these follks say. they have won their battles and know what lies ahead for you and your family. stay strong and keep you faith! prayers for all of you guys!

Elizabeth said...

Enjoy the joy. Take it as it comes. Trust me the last three months of pregnancy dragggggg... ;-)

Keeping you in my thoughts & prayers and sending Max some LUNG FUNCTION chants!
Elizabeth

Tricia said...

Hi Ashley... I just read your message on BOH and came to read your blog. I am Tricia, and my daughter, Cadenne, is nearly a year old.

One thing I'd recommend is reading blogs that represent lots of different paths. I learned SO much from the families that went before us. I felt like I was really "pre-informed" when doctors would come tell us things. I knew terminology, treatments, etc. and I feel that knowing it ahead of time helped me to process things as they came in that post-partem emotional time.

As for Cadenne, she was an ECMO baby, in hospital for 12 weeks, and came home with a g-tube. (just to give you an idea of what kind of "path" she had! :) ) Today she is doing fabulously... g-tube is gone and we have very few issues that relate to CDH.

Our blog address is: http://kariabi.blogspot.com if you want to read more! I will add yours to my list! :)