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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Wednesday, November 19, 2008

Goodbye to another doctor

So today I met with my regular OB doctor only to be informed by her that although Vanderbilt had suggested I continue routine care with her, she thinks I should go to Vanderbilt. She said that it would make financial sense to have everything at one place and while I could understand this, I think it may have been because she couldn't deliver me and wouldn't be getting that money. So, I suppose I will just suck it up and go to Vanderbilt for everything. I was hoping to avoid this as I have heard they aren't all that friendly there (or timely) but hopefully next Wed. my appointment there will prove otherwise. I wasn't particularly attached to this OB but at least I could get in and out relatively quickly.

On a better note the OB did tell me some stories back from her days delivering at Vanderbilt before she switched to another hospital. Now, I am not sure if this is true or if she was trying to make me feel better about CDH, but she claims that she witnessed one incident where she and others were sure the baby had CDH. She says that there were multiple ultrasounds that were all indicative of CDH and that the diagnosis was made. However, she says that when the baby was born, the condition was resolved and there was no CDH present. Obviously, this was exciting. I am not saying that I think this will happen in Maxton's case... but it is something new to pray about. It would be wonderful if this could happen with us. Again, I don't want anyone to think I am in denial or anything, just thought I would share. :-) (she also told me of some other stories where ultrasounds indicated things were wrong and then the babies were born fine).

Lastly, I wanted to let everyone know that a couple of weekends ago my father and I recorded a Christmas CD with me singing several songs. I think we did 8. I am in the process of duplicating them and plan to take "donations" for them to help pay for Maxton's medical bills. (apparently CDH babies are called "million dollar babies". we do have health insurance but it isn't the greatest. if there is anything raised that we don't use for healthcare will be given to some CDH organizations). For $10 ($12 if the CD will be mailed) you can get an Ashley Christmas Album or whatever I decide to call it. I had a lot of fun doing this and even though it is Christmas music, I plan to also play it for Max while he is in NICU. I figured that this was something I could do for Max now and really enjoyed it. Anyways, if you are interested, let me know at Ashleynaye@aol.com. :-)

Thanks again for reading and for prayers and thoughts and those doing lung function chants (those not doing lung function chants should start. :-) ). David and I (and Charley Dog) really appreciate everyone.

4 comments:

Liz and Shane Nelson said...

I am hoping you have a good visit with your new Dr. at vanderbilt. We are praying for you and Maxton. Keep being positive and have faith in God.

Alex & Ingrid Houchin said...

Hi,

We hope that your Dr's visit goes well at Vanderbilt. We've also been seen in 2 different hospitals and to be honest, I even lost count of how many doctor's we've spoken to. But it just seems that with every new Dr, we are one step closer :0). Good luck and do keep us updated on how everything goes.
And good luck with the CD. Sounds like a great idea.

Ingrid, Alex & Alina

Fer said...

The CD sounds like a good idea. I wish u the best luck with it. Also I continue to pray for you guys.
Fer
CHERUBS Mexican Rep.

Tracy Meats said...

Many continued prayers for Maxton--praying for his miracle!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS