As we speak they are switching Maxton from the high oscillating vent to the jet. Due to the bleed and the swelling, Maxton's tummy area is now pushing on his diaphragm, which is pushing on his lungs. His sats have dropped off dramatically this last couple hours to about 60 right now. The good thing is that his pressure is now up and staying up which makes them think the bleed has likely stopped. His heart rate is also in the 140s-150s. Hopefully the switch to the jet will help his oxygenation improve.
Plan B- If the oxygen doesn't improve then they will open his incision from yesterday, look around for the bleed and try to fix it, and then put a silo on. This would be a bag on the outside of his body to hold his intestines, which would remove some of the swelling volume and let his lungs expand more.
Plan C- If neither of these works then ECMO may be used.
Please pray that the doctors are able to stabilize our little man soon. We are so very concerned about this. We knew that he would likely be sicker after the surgery, but were hoping for the best and may have tricked ourselves into thinking he was going to do great. Today has been especially tough and it seems like it is only just starting.
Ashley and David and sweet baby Maxton
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About Me
- Maxton's Mommy
- David and I have been married since May 28th, 2005. We were blessed with a child, Maxton, born on 3/3/09 with left sided CDH. Maxton fought for 18 days before earning his wings. We are so proud of our little warrior and cannot wait to see him again one day. In the meantime we are learning how to live life as childless parents. We have a great dog, named Charley, who we treat like a child. :-) I am a mental health case manager working with adults with severe and persistent mental illness. David works at Walgreens Pharmacy.
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Maxton's Big Brother- Charley Dog
6 comments:
Sending lots of prayers and positive energy Maxton's way!
Amber
This isn't unusual, but it is when you go through it with your baby. Keeping you all in my thoughts and prayers may the bleeding stop and he start healing!
(Lung Function chants too!)
Elizabeth
Hang in there you guys. We are sending lots and lots of prayers and "healing vibes" your way. Max ALWAYS seems to rebound--don't lose faith! I wish this ordeal was easier--I know I am scared to death of what lies ahead--but Max is a strong little guy.
Much love and keep us posted...
Thanks for the update!
Here's hoping plan "A" is successful!
Many prayers coming your way!
((HUGS))
Sheryl
Just checking back in on Hoss! Maxton is still in my thoughts an d prayers.
April
hi my name is liz, my grandson was born oct. 21, 08 with cdh. he continues to do wonderful each day, we are so lucky and they gave us little if any hope when he was born. he had his surgery 2 days after birth. he has only one functioning fully matured kidney, and one fully funtioning the lung, never been given many details about the other, and his heart is on the wrong side...despite all this he has been home since thanksgiving and has only had a few setbacks non requiring hospitalization...i thank god everyday and your guy is such a fighter and i know he has some special angels watching over him every minute of everyday...even during the hard times take a few minutes to refuel your inner self..remember you have to take care of yourself to beable to continue to take care of him...maxton, you and your family are in my daily prayers and i have also added him to my church prayer list...if you ever need to talk you can email me at ecary1962@yahoo.com
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