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Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Thursday, January 8, 2009

A Good Dr.'s Appt!!!

Yesterday I went to the high risk OB at Vandy Children's Hospital. I see her about every 3-4 weeks. Anyways, things with Maxton are looking good. So far nothing new has herniated- so it's just bowel and part of his stomach in his left chest. His heart rate was good. He is head down again instead of breech (and kicking momma like crazy- i think he was throwing a temper tantrum the other day because I could feel all four limbs moving around). His kidneys looked good. Pretty much everything looked good. I asked about lung tissue and she said that they could see some on the left but that it was tricky to say how much because your lungs are deflated until birth. She said that his chest circumference is growing like it should be so she is assuming that means lungs are growing also- that was good enough for me! I have decided to nickname him Hoss, as he now weighs 5 pounds!!!! He was 4.2 last week and 3.1 3 weeks ago. He is my little Hoss, which should help him fight CDH booty!

When I first went in for my scan there were still some pictures on the machine and the tech was talking to another tech or student and was pointing out something and said "right sided CDH". I knew those weren't my pictures because Max has left CDH. They then said they have seen several CDH people lately. Afterwards, I asked the woman who is sort of the program coordinator if I could leave my contact information for the other CDH mothers in case they are interested in talking. She seemed to think that was a good idea, so I gave her some information. I figured I have been lucky to find so much support and want to make sure these other women know this support is out there. The coordinator did say that CDH was the "diagnosis of the month" a couple of months ago. I feel bad that it sounds like several other women are going through all of this too. I was also concerned about how many women there are and when they are due since Vandy only has 3 ECMO machines. I will probably be asking about that at my next appt.

Next up- a BPP next week. An MRI at the end of the month. Then Feb. 2nd (i think) we are meeting to discuss Maxton's birth plan!! He will be here before I know it!!! Thanks for following and praying. We appreciate everyone of you!

7 comments:

Jonathan and Sarah said...

Good job Baby Hoss! ;) They had a hard time finding how much lung Noah had too pre-birth... It is so crazy that not many people know about CDH (I know I had never heard of it before Noah) Yet it's as common as cystic fibrosis!? Doesn't make sense! I think its awesome you shared your info...you may be just what one of those other mommys need right now! We are praying for ya'll!

Tracy Meats said...

Wonderful news--it sounds like the appointment went very well and baby Maxton is growing!! Many continued prayers your little guy continues to get stronger with each passing day and what good news he is not in a breech position. Stay strong and continue to believe in miracles!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Marion said...

I am glad to hear that he is doing well. I have decided that all you can do is remain positive and pray!

Craig and Kristi Kuehl said...

Great appointment! He is gonna be a BIG BOY...Time does seem to be flying by, and our LO's will be here before we know it. I continue to pray for Maxton and believe that God will take care of our little guys. We decided yesterday that I will have a c-section when Kaden is born (I already had one with my 14 year old) and they think that the less stress on him the better. Now I am mentally trying to prepare for that! We got some really great pics of him yesterday at UCSF--I can hardly wait to see him in person. Keep us posted and much love :)

Kristi

Liz and Shane Nelson said...

Keep it up Maxton, you are doing great! You are so thoughtful of thinking of others as you are going through this yourself. I hope the other mommys contact you for support. We are praying for Maxton.

Sky + Carla said...

Nice to hear that he is doing okay :) It's good that he is a big boy (according to my Perinatologist) that way he will do better during and after surgery. I'm almost 35 weeks and my boy is also big he's already 6lbs. I don't want him to gain to much more b/c I want to be able to push him out, lol :)

~ Carla

Alex & Ingrid Houchin said...

Hey guys - this is good news.
The last ultrasound we had before birth also had a few things mentioned like good kidneys, decent chest size, etc and culminated in the professor saying he was "quite confident in this one", so hopefully this is a good sign for you guys ahead of the big day.
/Alex, Ingrid and Alina.