Our son Maxton was diagnosed with left-sided congenital diaphragmatic hernia (CDH) at his 19 week ultrasound. Maxton was born on 3/3/09 at Vanderbilt University. He fought hard for 18 days but earned his wings on 3/21/09. Maxton was an inspiration to many during his brief time on earth and has forever changed our lives. If your child is diagnosed with CDH, please feel free to contact us. Maxton may no longer live here on earth, but he will live forever in our hearts...

To start at the beginning of our story click here and scroll all the way to the bottom.

Friday, January 23, 2009

33 weeks

First of all, let me say that my shower on Sunday was also very nice. I plan to post some pictures from it and a picture of all of Maxton's nice new things. He is going to be so spoiled. It is funny, before I found out I was pregnant I talked with my parents about what type of parent I wanted to be. My family is pretty overweight and I had decided that I didn't want Maxton to eat a lot of junk food. I also didn't want his grandparents to buy him anything and everything without checking with us first. Small gifts are okay, I just didn't want us to tell him he can't get something and then grandma show up with it the next day. Anyways, now I am like- Maxton can have whatever he wants :-) but more importantly, from reading other CDH blogs, Maxton can eat anything he wants to!!! Most CDH babies have trouble with feeding so I am thinking if I can get Max to eat it then he can have it. :-)

Today I went for a BPP. It went well. Maxton was practice breathing and as the tech said "he is breathing away". I hope that this is a good sign for things to come. The first thing she scanned was his head, then she scanned his hand. Little Max gave us the "thumbs up" again. I swear, he is trying to tell me not to worry and that he will be okay. He wiggled around alot today. I am hoping that he is able to stay still on Monday when we have our MRI. The big news from today was that Maxton has gained 1.2 lbs. He now weighs in a 6.2 pounds. He really is my little Hoss (who isn't so little) :-). My fluid is creeping back up and was 26 today. I figured it was going up because my tummy has been more sore this week. Hopefully it will go back down over the weekend. I have the MRI monday, then a BPP and doctor appt. on Tuesday. Anyways, thanks for praying for little Maxton. I feel strong for him. I have started to want to nest, even though we have decided not to fully do a nursery yet (we are hoping to move and would like to not have to move a bunch of baby furniture). I have been looking at furniture and wanting to buy it but my husband still thinks we should wait. I agree, but want my baby's room to be all cute and ready for him when he comes home. He will have a bassinet ready for him and I guess that is good enough. :-) Plus, I have plenty of clothes and things to wash to nest. :-) Hope everyone has a good weekend!


Dotty said...

Hey! im not sure if you have checked out our blog on Zach, lcdh and 33 week preemie oct 26 2007 or not, if not it is on page name is Zacharydavis

i just wanted to let you know im following your story and im remembering all the emotions i felt at this time. i think its a GREAT sign he is practicing breathing, i dont recall Zach doing that, my fluid levels got really high, hence the preemie part, i was measuring 42 weeks at 32 weeks.OUCH! lol. anyway we are praying for you and baby Maxton and i think its awesome he is giving you signs already. stay strong!!
God Bless!!

Tracy Meats said...

Many continued prayers for Maxton!! He sounds like he is doing great and I hope he keeps getting stronger with each passing day.

Hugs, Tracy Meats - WY and CO State Rep. for CHERUBS and mom to Ian, born with a LCDH on 4/3/04

Fer said...

many prayers for Maxton!
Mom to Juan Pablo (RCDH)

theparkerreesefoundation said...

Sounds like Maxton is doing great! We are continuing to keep your family in our thoughts and prayers!

Marion said...

I am so glad to hear that Maxton is doing well. I know what you mean about the nesting. We pretty much have Addison's room complete, but everyday, I go in and just move things around or refold the things in her dresser. Keep up the positive attitude. We do not have much longer to wait until we meet our precious little ones.