A Day at Vandy

Today David and I spent the majority of the day at Vanderbilt Children's Hospital meeting with several doctors. I can't say that I was overly impressed and am hoping that it is just pregnancy moodiness or something, but I wasn't really all that pleased with today. The one exception for that is the NICU, but I will get to that in a minute. First, we had an ultrasound, which the tech was an hour late for. (we were the first patients). Then, of course, there was a student with him so he mainly talked to the student and would eventually sort of tell us what they were talking about. I did feel slightly comfortable with the OB doctor, but she too mainly talked to the student and not so much to me. I am hoping that my next visit with them will be more comfortable. The good news is that the babies heart looks normal, he is over normal weight, measurements are normal.. everything is normal except the CDH. Today the scan showed that part of his bowel and only part of his stomach were in his chest cavity, no liver, no spleen- which I was excited about. In fact, I think Maxton was excited too because when they went to scan his little hand he did the thumbs up for the scan. :-)

After meeting with the OB doctor, we met with the surgeon and neonatologist together. They were both there to basically explain CDH, but I had already read everything they told us, so I didn't really learn much other than they won't know who will be our actual surgeon until right before surgery because they each take turns and it will be assigned to someone then. I am not really sure how I feel about this. That makes me fearful that the person who is assigned won't necessarily be an "expert" in this type of surgery, but I am not going to worry too much about that until the time gets closer. He did say they see about 15-20 CDH babies a year, which sounds pretty good (though lower than I had expected).

Our genetics appt. was cancelled due to us running late (though not our fault that the tech was an hour late) and because she had a sick child.

We did get to tour the NICU today. I wanted to do this because I am not sure how often David will be with me. I was very pleased with the NICU. The staff seemed friendly and I was excited that there are not really any set visiting hours, though there were hours posted, but from what I understand it doesn't apply to parents really. The hours listed from 9a-9p, so even that is really good! Also, the best part, was that each baby gets their own room with a rocker and some even have windows. I like that Maxton will have his own room to get well in. I also like it because we will have some privacy with our baby. :-)

The only other thing that bothered me today was that I was told I will not likely be seeing Dr. Lombardi after Monday. He is my favorite of the 3 OBs I have seen and would prefer to keep seeing him. I plan to discuss this with him further on Monday and am hopeful to continue to see him, but we will see. He is a high risk OB and I will be assigned one at Vandy, so I don't guess I really need two.. I just felt most comfortable at his office. I forgot to mention this last week, but the woman who did my ultrasound at his office was amazing... she made me feel so comfortable and even shared some of her life with me. She also told me that she felt like my gift from God was mercy and that I would be very good with Max. This made the diagnosis much less traumatic and I hate to think I won't see her anymore.

So all in all today wasn't all that great in terms of my care, but it was pretty good in terms of Max's care and that is what is most important. I am hopeful that I will feel better at the next visit. By the way, Vanderbilt Children's Hospital is so nice. It is very kid friendly and I feel lucky to have it. I used to volunteer there before the actual separate hospital was built. It was nice to see the new building today.

I am going in for another appointment on Monday (then hopefully less frequently) and plan to update again at that time. Thanks to everyone for their support. We really appreciate it!